Two of my sisters and I were born with a unique strain of muscular dystrophy, a neuromuscular disorder that affects our muscles and has resulted in multiple orthopedic and ocular procedures. This shared history has become the foundation for my work. I use our experiences to explore how poorly people with disabilities are treated.
Our current administration consistently diminishes the rights and dignity of people that are ‘other.’ It encourages the notion that minorities are less than human. My mere existence is an act of resistance. I am trying to create more abstracted figures to reflect this dehumanizing existence that my community, and many communities, is facing in our society. I imagine the figures I create are slowly growing stronger and stronger until one day they take over and our world is flooded with atypical forms. I hope to show that these figures are accepted amongst themselves. That they built a utopia because one was never given to them the way it is given to others. That their greatest challenge has always been facing those who discriminate against them. That they are more disabled by the able bodied people around them than they ever could be by their abnormalities. Will they ever be able to thrive in a world that is presently not their own?
I find myself returning often to a quote from Mary Shelley's Frankenstein that encapsulates this hopelessness of someone on the margins of society: “Once I falsely hoped to meet with beings who, pardoning my outward form, would love me for the excellent qualities which I was capable of unfolding.”